Projects

I currently lead several applied projects at the Texas Center for Disability Studies. My primary areas of focus are disability and health, and also sibling experiences. I also teach disability studies classes at the UT-Austin School of Social Work.

In addition to my applied work, I am engaged in multiple writing projects. My writing incorporates my anthropological background to examine a variety of topics, ranging from health and disability to parenting, travel, animals, and food. I am in the process of reworking my dissertation on undiagnosis for publication as a narrative nonfiction book, and I also dabble with fiction as a tool for social justice. I enjoy writing regular op-ed pieces about disability themes, as well as contributing longer-form articles for online publications and blogs that bridge academic and public audiences. I held several editorial positions in the past and I enjoy working collaboratively on writing projects.

Previously, I conducted long-term research on family experiences with undiagnosed disabilities resulting from genetic syndromes. This project used ethnographic fieldwork conducted in both Central America and the U.S. to examine the social life of undiagnosed and extremely rare disabilities.